What's ironic is that, the minute I was given this diagnosis by the neurologist was the minute this very same neurologist said "I don't need to see you unless things regress". Well...thank you! Indeed, this wasn't supposed to be a progressive condition, so he was NOT expected to regress. So this very neurologist was basically telling me, yeah, you got this terrible condition that I don't know much about....but you have to live with it for the rest of your life, but I have nothing to do with you, not anymore.
That was basically our first step onto the path of disillusion with 'mainstream doctors'. I know that in order to help my son, the only way to go was search for the 'alternatives' - treatments that are not recognized by the mainstream but have the potential to get Jason better (whatever that means) with sound theories, and trustworthy testimonials. We have searched high and low, far and close in search for that one treatment. But it wasn't until Jason was 6 that I realized that with a disorder so complicated embracing all facets of human functions, how can we expect one single treatment will put him on the right track? I know that what I am looking for is a cocktail of treatments that together, will give him his better chance.
Now at 11 years old, we are doing ABR, g-therapy, mineral therapy (tissue salts), and will be topping that up with Marcy Lindheimer, who is an Anat Baniel Method practitioner based in New York.
While a developmental pediatrician told me that if a child doesn't walk by 8, the chance of him walking is slim, I still believe, that if I continue to believe, Jason will defy 'mainstream' reasoning and may end up being the 'latest' walker in the world.
This blog is to register that process, and share our tears, joy, challenges, and rewards when we are working on the 'miracle-in-progress'.
