Jason was born with a rare neurological condition called cerebellar hypoplasia that rendered him multiply disabled. This blog is about the journey that we embarked since his birth, the daily challenges, the valuable lessons he taught us, and the ongoing search for treatment(s) across the world that will give him a better chance in life.
Wednesday, May 30, 2012
MRI result - preliminary
It's been two weeks since the MRI was done. The result should be out but no calls from Dr. Fung the neurologist. I called the nurse last week and all she said were typical procedures to get rid of me. I was furious. I felt passive and helpless and I want to find out what it says.
Today I was at the ophthalmagist clinic at Queen Mary Hospital. Being an opportunist, I asked the dr. if she saw the report already on Jason's record. She's so nice and she even let me read the report right from her computer. I have developed a proficiency in reading medical reports by now to tell that the report doesn't look good. I was surprised to se the word "cerebral atrophy". I even doubted if it was a typo cuz Jason was supposed to have "cerebellar hypoplasia" or "atrophy" if you like. But cerebral??
I continued to read: "......enlarged ventricles...wider sulci....and lastly a cyst on his cerebellum". Last but not least (an even bigger surprise), the cerebellar vermis (the worm-like tissue between two sides of the cerebellum) that was never fully developed since his first MRI, was said to be "intact"! What? Did it grow? If it is really the case, then this would be one piece of good news out of rest. Could this be a mistake? But this is QMH, they are supposed to be the best!
The ophthalmagist looked at my response and was trying to explain to me that this is just the preliminary impression by the imaging technician. The neurologist still has to read and compare the old and new films to give more meaningful comments.
I am expecting this MRI to compare the size of Jason's cerebellum only. I never expect to have a totally new picture pointing towards potentially a new diagnosis. I have so many question and worries...
DH was wonderful in trying to comfort me. So was I, trying my best to comfort myself. I look at Jason and how much he can do....yes, if indeed he has an atrophic brain, it would have been a miracle already to look at what he CAN do! He can eat, he can smile, he can tell us he's hungry, he tells us if he needs to pee or poo; he can hug and kiss, and most of all, he can pray and say "Amen". After our bedtime prayers tonight, I felt really good. After all the worries and weepy moments, I have not lost heart. I have not lost Faith. I still have Hope, and sure there is lots of Love around us. If I have all three of them, why fear?
I wrote an email to Dr. Fung via the enquiry email address, (I was upset also that his email address is not public which is common practice for doctors in other hospitals in Hong Kong or Canada) I hope he will answer and invite me for a meeting.
If you happen to bump into this post, please say a little prayer for Jason and our family. I know God is behind all these and the new sequel to our wonderful journey is about to begin.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment